The Long and Winding Road: Archiving and Re-Using Qualitative Data from 12 Research Projects Spanning 16 Years

Article


Dodds, C., Keogh, P., Bourne, A., McDaid, L., Squire, C., Weatherburn, P. and Young, I. 2020. The Long and Winding Road: Archiving and Re-Using Qualitative Data from 12 Research Projects Spanning 16 Years. Sociological Research Online. 26 (2), pp. 269-287. https://doi.org/10.1177/1360780420924044
AuthorsDodds, C., Keogh, P., Bourne, A., McDaid, L., Squire, C., Weatherburn, P. and Young, I.
Abstract

We describe a pilot project designed to assess the feasibility of re-use across 12 diverse qualitative datasets related to HIV in the UK, from research projects undertaken between 1997 and 2013 – an approach which is chronically under-used. First, we consider the sweeping biomedical changes and imperatives relating to HIV in this timeframe, offering a rationale for data re-use at this point in the epidemic. We then reflexively situate the processes and procedures we devised for this study with reference to relevant methodological literature. Hammersley’s (2010) and Leonelli’s (2016) contributions have been particularly instructive through this process, and following their lead, we conclude with further considerations for those undertaking qualitative data re-use, reflecting on the extent to which qualitative data re-use as a practice requires attention to both the given and the constructed aspects of data when assembled as evidence.

JournalSociological Research Online
Journal citation26 (2), pp. 269-287
ISSN1360-7804
Year2020
PublisherSAGE Publications
Accepted author manuscript
License
File Access Level
Repository staff only
Publisher's version
License
File Access Level
Anyone
Digital Object Identifier (DOI)https://doi.org/10.1177/1360780420924044
Publication dates
Online14 Jun 2020
Publication process dates
Accepted12 Apr 2020
Deposited16 Apr 2020
FunderWellcome Trust
UK Medical Research Council (MRC) and Scottish Government Chief Scientist Office (CSO)
Nuffield Foundation
University of East London
Scottish Government Chief Scientist Office
Medical Research Council (MRC)
Copyright holder© 2020 The Authors.
Permalink -

https://repository.uel.ac.uk/item/87x3w

Download files


Publisher's version
1360780420924044.pdf
License: CC BY 4.0
File access level: Anyone

  • 141
    total views
  • 78
    total downloads
  • 0
    views this month
  • 2
    downloads this month

Export as

Related outputs

Narrative Relations and Associations: Catherine Kohler Riessman’s Research Dialogism
Esin, C. and Squire, C. 2021. Narrative Relations and Associations: Catherine Kohler Riessman’s Research Dialogism. Narrative Works: Issues, Investigations & Interventions. 10, pp. 107-116.
Moral barriers to HIV prevention and care for gay and bisexual men: Challenges in times of conservatism in Brazil
da Silva, L. A. V., Duarte, F. M., Magno, L., Dourado, I. and Squire, C. 2021. Moral barriers to HIV prevention and care for gay and bisexual men: Challenges in times of conservatism in Brazil. Sociology of Health & Illness. 43 (2), pp. 424-440. https://doi.org/10.1111/1467-9566.13230
LOLS@stigma: comedy as activism in the changing times of the HIV epidemic
Mulubale, S., Rohleder, P. and Squire, C. 2020. LOLS@stigma: comedy as activism in the changing times of the HIV epidemic. Critical Public Health. 31 (3), pp. 255-267. https://doi.org/10.1080/09581596.2020.1838445
The 'Jungle' is here the jungle is outside: university teaching in the Calais refugee camp
Squire, C. and Zaman, T. 2020. The 'Jungle' is here the jungle is outside: university teaching in the Calais refugee camp. in: Bhabha, J., Giles, W. and Mahomed, F. (ed.) A Better Future: The Role of Higher Education for Displaced and Marginalised People Cambridge University Press.
The Personal is Political: The Social Justice Functions of Stories
Mishler, E. and Squire, C. 2020. The Personal is Political: The Social Justice Functions of Stories. in: Squire, C. (ed.) Stories Changing Lives: Narratives and Paths toward Social Change Oxford University Press.
Researching Family Narratives
Phoenix, A., Brannen, J. and Squire, C. 2020. Researching Family Narratives. SAGE Publications.
Foreword to APPG Policy Report: The Missing Link: HIV and mental health
Campbell, T., Dalton, D., Fleming, P., Llorca, G., Mulubale, S., Rattue, M., Serle, F. and Squire, C. 2020. Foreword to APPG Policy Report: The Missing Link: HIV and mental health. The APPG on HIV and AIDS.
Migration, Racism and the Hostile Environment: Making the Case for the Social Sciences
Andrews, M., Arnot, M., Anthias, F., Ashe, S., Brah, A., Dona, G., Erel, U., Gidley, B., Humphris, R., Kofman, E., Mondon, A., Murji, K., Phoenix, A., Sigona, N., Squire, C., Targarona, N., Wemyss, G., Winter, A. and Yuval-Davis, N. 2020. Migration, Racism and the Hostile Environment: Making the Case for the Social Sciences. London Social Scientists Against The Hostile Environment.
From Margin to Centre? Practising New Forms of European Politics and Citizenship in the Calais ‘Jungle’
Hall, T., Lounasmaa, A. and Squire, C. 2019. From Margin to Centre? Practising New Forms of European Politics and Citizenship in the Calais ‘Jungle’. in: Birey, T., Cantat, C., Maczynska, E. and Sevinin, E. (ed.) Challenging the Political Across Borders: Migrants’ and Solidarity Struggles Central European University. pp. 99-128
The Politics of Personal HIV Stories
Squire, C. 2016. The Politics of Personal HIV Stories. in: Goodson, Ivor, Antikainen, Ari, Sikes, Pat and Andrews, Molly (ed.) Routledge International Handbook on Narrative and Life History Routledge.
Life Stories
Squire, C. 2017. Life Stories. in: Maybin, Janet (ed.) Narrative, Language and Creativity Open University.
Ten Years After: An ‘Austerity Audit’ of Services and Living Conditions for People Living with HIV in the UK, a Decade after the Financial Crisis
Aduaka, C., Campbell, T., Clift, P., Forbes, K., Gilby, L., Goel, P., Gowar, C., Irtwange-Shikaru, R., Karibo, A., Llorca, G., McLeish, V., Mulubale, S., Paparini, S., Rattue, M., Rohleder, P., Squire, C., Thamm, W. and Welbourne, A. 2018. Ten Years After: An ‘Austerity Audit’ of Services and Living Conditions for People Living with HIV in the UK, a Decade after the Financial Crisis. HIV Psychosocial Network.
HIV Disclosure: Practices, Knowledges and Ethics
Squire, C. 2014. HIV Disclosure: Practices, Knowledges and Ethics. in: Davis, Mark and Manderson, Lenore (ed.) Disclosure in Health and Illness Routledge.
Narratives of Normativity and Permissible Transgression: Mothers' Blogs About Mothering, Family and Food in Resource-Constrained Times
Elliott, Heather, Squire, C. and O'Connell, Rebecca 2017. Narratives of Normativity and Permissible Transgression: Mothers' Blogs About Mothering, Family and Food in Resource-Constrained Times. Forum: Qualitative Social Research / Forum Qualitative Sozialforschung. 18 (1), p. Art. 7. https://doi.org/10.17169/fqs-18.1.2775
Narratives Across Media as Ways of Knowing
Elliott, Heather and Squire, C. 2017. Narratives Across Media as Ways of Knowing. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research. 18 (1), p. Art.17. https://doi.org/10.17169/fqs-18.1.2767
What is narrative research? Starting out
Squire, C. 2014. What is narrative research? Starting out. in: What is Narrative Research? London Bloomsbury Publishing.
Narratives as Responses to Interpersonal Violence: The Case of HIV
Squire, C., Wade, Allan and Gadd, David 2015. Narratives as Responses to Interpersonal Violence: The Case of HIV. in: Hydén, Margareta (ed.) Response Based Approaches to the Study of Interpersonal Violence Palgrave Macmillan UK. pp. 36-55
Partial Secrets
Squire, C. 2015. Partial Secrets. Current Anthropology. 56 (S12), pp. S201-S210.
Development of methodologies for researching online: the case of food blogs
Domingo, Myrrh, Kress, Gunther, O'Connell, Rebecca, Elliott, Heather, Squire, C., Jewitt, Casey and Adami, Elisabetta 2014. Development of methodologies for researching online: the case of food blogs. London National Centre for Research Methods.
Introduction: What is narrative research?
Squire, C., Andrews, Molly and Tamboukou, M. 2013. Introduction: What is narrative research? in: Doing narrative research SAGE.
From Experience-Centred to Socioculturally-Oriented Approaches to Narrative
Squire, C. 2013. From Experience-Centred to Socioculturally-Oriented Approaches to Narrative. in: Andrews, Molly, Squire, Corinne and Tamboukou, Maria (ed.) Doing Narrative Research London SAGE.
Why the three letters matter
Squire, C. 2013. Why the three letters matter. in: Squire, Corinne (ed.) Living with HIV and ARV: three letter lives Palgrave Macmillan. pp. 3-11
Reading the rereadings: Valerie Walkerdine responds to the commentaries on ‘Video Replay’
Walkerdine, Valerie and Squire, C. 2010. Reading the rereadings: Valerie Walkerdine responds to the commentaries on ‘Video Replay’. Psychoanalysis, Culture & Society. 15 (4), pp. 412-417.
Press replay – Introduction to special section on rereading Valerie Walkerdine's ‘Video replay: Families, films and fantasy’
Squire, C. 2010. Press replay – Introduction to special section on rereading Valerie Walkerdine's ‘Video replay: Families, films and fantasy’. Psychoanalysis, Culture & Society. 15 (4), pp. 376-384.
What is narrative?
Squire, C. 2012. What is narrative? National Centre for Research Methods.
Narratives, connections and social change
Squire, C. 2012. Narratives, connections and social change. Narrative Inquiry. 22 (1), pp. 50-68.
Narratives and the gift of the future
Squire, C. 2012. Narratives and the gift of the future. Narrative Works: Issues, Investigations & Interventions. 2 (1), pp. 67-82.
Visual Autobiographies in East London: Narratives of Still Images, Interpersonal Exchanges, and Intrapersonal Dialogues
Esin, C. and Squire, C. 2013. Visual Autobiographies in East London: Narratives of Still Images, Interpersonal Exchanges, and Intrapersonal Dialogues. Forum: Qualitative Social Research. 14 (2).
'You Are Here': Visual Autobiographies, Cultural-Spatial Positioning, and Resources for Urban Living
Squire, C., Esin, C. and Burman, Chila 2013. 'You Are Here': Visual Autobiographies, Cultural-Spatial Positioning, and Resources for Urban Living. Sociological Research Online. 18 (3), p. 1ff..
Narrative Analysis: The Constructionist Approach
Esin, C., Fathi, Mastoureh and Squire, C. 2013. Narrative Analysis: The Constructionist Approach. in: Lick, Uwe (ed.) The SAGE Handbook of Qualitative Data Analysis SAGE.
Experiences of people living with HIV
Squire, C. and Daniel, Lumka 2009. Experiences of people living with HIV. in: HIV in South Africa 25 Years On: Psychosocial Perspectives Springer. pp. 255-272
Particularity, potentiation, citizenship and pragmatism
Squire, C. and Davis, Mark 2010. Particularity, potentiation, citizenship and pragmatism. in: HIV Treatment and Prevention Technologies in International Perspective Palgrave Macmillan.
HIV Technologies
Squire, C. and Davis, Mark 2010. HIV Technologies. in: Davis, Mark and Squire, Corinne (ed.) HIV Treatment and Prevention Technologies in International Perspective Palgrave Macmillan.
Technologies of treatment: Scaling up ART in the Western Cape, South Africa
Squire, C. and Abdullah, Fareed 2010. Technologies of treatment: Scaling up ART in the Western Cape, South Africa. in: HIV Treatment and Prevention Technologies in International Perspective Palgrave Macmillan.
Being naturalised, being left behind: the HIV citizen in the era of treatment possibility
Squire, C. 2010. Being naturalised, being left behind: the HIV citizen in the era of treatment possibility. Critical Public Health.
Shifting the focus: sequential methods of analysis with qualitative data
Simons, Lucy, Lathlean, Judith and Squire, C. 2008. Shifting the focus: sequential methods of analysis with qualitative data. Qual Health Res.
The Public Life of Emotions
Squire, C. 2001. The Public Life of Emotions. International Journal of Critical Psychology.
Can an HIV positive woman find true love? Romance in the stories of women living with HIV
Squire, C. 2003. Can an HIV positive woman find true love? Romance in the stories of women living with HIV. Feminism & Psychology. 13 (1), pp. 73-100.
Reading Narratives
Squire, C. 2005. Reading Narratives. Group Analysis. 38 (1), pp. 91-107.