The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond

Article


Bara, D. 2018. The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond. Illness, Crisis and Loss. 29 (1), pp. 19-36. https://doi.org/10.1177/1054137318755281
AuthorsBara, D.
Abstract

The siblings of children diagnosed with cancer can get lost in the cancer journey. Through a mother’s eyes, this paper examines the issues faced by three siblings when their teenage sister is diagnosed with and dies of cancer. It focusses on the impact their sister’s illness has on their educational, social, emotional and communication skills. Each sibling not only had their own unique set of needs but this paper argues that the term ‘cancer survivor’ should also be extended to the siblings as they comprise an intrinsic part of the family’s cancer journey. The paper calls on professionals to adopt a holistic approach to reduce the impact that childhood cancer has on the siblings and it highlights the far-reaching consequences of not properly supporting the siblings during this time.

JournalIllness, Crisis and Loss
Journal citation29 (1), pp. 19-36
ISSN1054-1373
Year2018
PublisherSAGE Publications
Accepted author manuscript
License
File Access Level
Anyone
Digital Object Identifier (DOI)https://doi.org/10.1177/1054137318755281
Publication dates
Online12 Feb 2018
Publication process dates
Deposited24 Jan 2018
Accepted20 Dec 2017
Accepted20 Dec 2017
Copyright information© 2018 Bara. Reprinted by permission of SAGE Publications.
Additional information

As accepted for publication in Bara, D. 2018. The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond. Illness, Crisis and Loss. 29 (1), pp. 19-36. https://doi.org/10.1177/1054137318755281.

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The hidden cost of cancer the siblings' story.pdf
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File access level: Anyone

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In my hours of need, I was robbed of my family, friends, beliefs and education. A mother’s narrative on her 14-year-old daughter's nine-month journey from ill health to death.
Bara, D. 2017. In my hours of need, I was robbed of my family, friends, beliefs and education. A mother’s narrative on her 14-year-old daughter's nine-month journey from ill health to death. Illness, Crisis and Loss. 28 (2), pp. 158-174. https://doi.org/10.1177/1054137317706927