Positioning, telling, and performing a male illness: Chronic prostatitis/chronic pelvic pain syndrome

Article


Wood, N., Qureshi, Annum and Mughal, Fahim 2017. Positioning, telling, and performing a male illness: Chronic prostatitis/chronic pelvic pain syndrome. British Journal of Health Psychology. 22 (4), pp. 904-919.
AuthorsWood, N., Qureshi, Annum and Mughal, Fahim
Abstract

Objectives

There is a paucity of illness accounts of men with chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS), despite a significant level of prevalence and burden of disease. This qualitative study thus elicited twelve accounts from men suffering with CP/CPPS.
Methods

Narrative analysis was employed, focusing primarily on narrative content.
Results

Three major narrative themes were identified: (1) Medical stories: Blame and shame; (2) The Erratic nature of CP/CPPS; and (3) Ongoing struggles for coping and cures and the Search for meaning.
Conclusions

Recommendations were made for health care providers and increasing the internal agency, support and activism of men with this debilitating condition.

What is already known on this subject?

One qualitative account of this male illness (CP/CPPS) exists: an IPA study.
Five cross‐sectional themes: (1) Need for repeated confirmation – disease not life‐threatening nor leading inexorably towards cancer; (2) Disturbed sleep and fatigue; (3) Concealing pain and problems – ‘normalizing’; (4) Enduring pain by performing activities; and (5) Abrupt mood swings and limited sociality.

What does this study add?

Narrative analysis adds information as to how this illness is managed and survived over time.
It challenges the findings (above) by providing an insider perspective.
Novel narrative themes include meaning‐making amongst others.
Masculine performance and experiences are also crucial to this stigmatized illness.

JournalBritish Journal of Health Psychology
Journal citation22 (4), pp. 904-919
ISSN1359107X
Year2017
PublisherWiley and The British Psychological Society
Accepted author manuscript
License
Digital Object Identifier (DOI)doi:10.1111/bjhp.12261
Web address (URL)https://doi.org/10.1111/bjhp.12261
Publication dates
Print11 Aug 2017
Publication process dates
Deposited26 Mar 2018
Copyright informationThis is the peer reviewed version of the following article: Wood, Nicholas and Qureshi, Annum and Mughal, Fahim (2017) ‘Positioning, telling, and performing a male illness: Chronic prostatitis/chronic pelvic pain syndrome’, British Journal of Health Psychology, 22(4), pp. 904-919, which has been published in final form at https://doi.org/10.1111/bjhp.12261. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
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