Stories of professional care: Narrative analysis of accounts from people with dementia
Prof Doc Thesis
Hughes, Tessa 2014. Stories of professional care: Narrative analysis of accounts from people with dementia. Prof Doc Thesis University of East London School of Psychology
|Type||Prof Doc Thesis|
UK dementia care policy and practice guidelines (e.g. Department of Health,
The current research aimed to elicit narrative accounts of the professional care experiences of people with labels of dementia to contribute to the development of dementia care theory and practice based upon, and responsive to, individual experiences. Accounts were elicited across voluntary and statutory dementia services via three one to one unstructured interviews, and a group of five service users meeting over three occasions. Narrative analysis of participants’ accounts attended to personal and collective stories told and the dialogical relationships between narrator and audience within the broader socio-political context (Phoenix, 2008; Stephens & Breheny, 2013).
The communicative and narrative abilities of older people with labels of dementia were demonstrated as participants’ (co)constructed preferred identities, took up, were assigned and attempted to resist a range of positions (e.g. experienced, independent, passive and vulnerable) and imagined alternative possibilities for care, such as interdependence. Reder and Fredman’s (1996) ‘relationship to help’ framework was drawn upon to make sense of interactions in participants’ accounts between diverse perspectives and life histories with a much smaller repertoire of public narratives associated with dementia care. In privileging experiential knowledge, and attending to the language used by people with labels of dementia, the findings indicate possibilities for citizenship models of dementia based upon relational support, personal agency and compassion.
|Digital Object Identifier (DOI)||doi:10.15123/PUB.4063|
|Publication process dates|
|Deposited||11 Mar 2015|
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