Creative collaboration on a disability and sexuality participatory action research project: A reflective diary account

Article


Rohleder, P., Braathen, Stine Hellum, Carew, Mark T, Chiwaula, Mussa, Hunt, Xanthe and Swartz, Leslie 2018. Creative collaboration on a disability and sexuality participatory action research project: A reflective diary account. Qualitative Research in Psychology. https://doi.org/10.1080/14780887.2018.1499837
AuthorsRohleder, P., Braathen, Stine Hellum, Carew, Mark T, Chiwaula, Mussa, Hunt, Xanthe and Swartz, Leslie
Abstract

This article presents a team’s engagement with a creative collaborative project challenging the myths about the sexuality of people with physical disabilities in South Africa. The article is presented as a reflective diary account, which has been constructed from minutes of meetings, email correspondence, and personal reflections of the activities undertaken. We reflect on the work we have done and what we have learned as well as the decisions and dilemmas we had along the way and the increasingly creative process. We reflect on our work with reference to participatory action research and the use of arts-based methods for generating and disseminating knowledge. We believe this can provide a useful and practical resource for researchers who are new to participatory research methods.

JournalQualitative Research in Psychology
ISSN1478-0887
Year2018
PublisherTaylor & Francis
Accepted author manuscript
License
Digital Object Identifier (DOI)https://doi.org/10.1080/14780887.2018.1499837
Web address (URL)https://doi.org/10.1080/14780887.2018.1499837
Publication dates
Online13 Aug 2018
Publication process dates
Deposited11 Sep 2018
Accepted11 Jul 2018
Accepted11 Jul 2018
Copyright information© 2018 Taylor & Francis. This is an Accepted Manuscript of an article published by Taylor & Francis in Qualitative Research in Psychology on 13/08/2018, available online: http://www.tandfonline.com/10.1080/14780887.2018.1499837
Page rangeIn Press
LicenseAll rights reserved (under embargo)
Permalink -

https://repository.uel.ac.uk/item/84726

Download files


Accepted author manuscript
7500.pdf
License: All rights reserved

  • 243
    total views
  • 489
    total downloads
  • 2
    views this month
  • 0
    downloads this month

Export as

Related outputs

LOLS@stigma: comedy as activism in the changing times of the HIV epidemic
Mulubale, S., Rohleder, P. and Squire, C. 2020. LOLS@stigma: comedy as activism in the changing times of the HIV epidemic. Critical Public Health. 31 (3), pp. 255-267. https://doi.org/10.1080/09581596.2020.1838445
Sexuality erased, questioned, and explored: the experiences of South Africans with physical disabilities
Rohleder, P., Braathen, Stine Hellum, Hunt, Xanthe, Carew, Mark T. and Swartz, Leslie 2018. Sexuality erased, questioned, and explored: the experiences of South Africans with physical disabilities. Psychology & Sexuality. 9 (4), pp. 369-379. https://doi.org/10.1080/19419899.2018.1500935
Ten Years After: An ‘Austerity Audit’ of Services and Living Conditions for People Living with HIV in the UK, a Decade after the Financial Crisis
Aduaka, C., Campbell, T., Clift, P., Forbes, K., Gilby, L., Goel, P., Gowar, C., Irtwange-Shikaru, R., Karibo, A., Llorca, G., McLeish, V., Mulubale, S., Paparini, S., Rattue, M., Rohleder, P., Squire, C., Thamm, W. and Welbourne, A. 2018. Ten Years After: An ‘Austerity Audit’ of Services and Living Conditions for People Living with HIV in the UK, a Decade after the Financial Crisis. HIV Psychosocial Network.
Withdrawn, strong, kind, but de-gendered: Non-disabled South Africans’ stereotypes concerning persons with physical disabilities
Hunt, Xanthe, Carew, Mark, Braathen, Stine Hellum, Swartz, Leslie, Chiwaula, Mussa and Rohleder, P. 2018. Withdrawn, strong, kind, but de-gendered: Non-disabled South Africans’ stereotypes concerning persons with physical disabilities. Disability and Society. 33 (10), pp. 1579-1600. https://doi.org/10.1080/09687599.2018.1498768
Intimacy, intercourse, and adjustments: Experiences of sexual life of a group of people with physical disabilities in South Africa
Hunt, Xanthe, Braathen, Stine Hellum, Swartz, Leslie, Carew, Mark and Rohleder, P. 2017. Intimacy, intercourse, and adjustments: Experiences of sexual life of a group of people with physical disabilities in South Africa. Journal of Health Psychology. 23 (2), pp. 289 -305. https://doi.org/10.1177/1359105317741761
The sexual lives of people with disabilities within low- and middle-income countries: A scoping study of studies published in English
Carew, M., Braathen, S., Swartz, L., Hunter, X. and Rohleder, P. 2017. The sexual lives of people with disabilities within low- and middle-income countries: A scoping study of studies published in English. Global Health Action. 10 (1), p. Art. 1337342. https://doi.org/10.1080/16549716.2017.1337342
'When it comes to HIV, that’s when you find out the genuinity of that love’: The experience of disclosing a HIV+ status to an intimate partner
Smith, Charlotte, Cook, Rachel and Rohleder, P. 2017. 'When it comes to HIV, that’s when you find out the genuinity of that love’: The experience of disclosing a HIV+ status to an intimate partner. Journal of Health Psychology. 24 (8), pp. 1011-1022. https://doi.org/10.1177/1359105317691588
Dating persons with physical disabilities: The perceptions of South Africans without disabilities
Hunt, Xanthe, Swartz, Leslie, Carew, Mark Thomas, Braathen, Stine Hellum, Chiwaula, Mussa and Rohleder, P. 2017. Dating persons with physical disabilities: The perceptions of South Africans without disabilities. Culture, Health and Sexuality. 20 (2), pp. 141-155. https://doi.org/10.1080/13691058.2017.1334964
The sexual and reproductive rights and benefit derived from sexual and reproductive health services of people with physical disabilities in South Africa: beliefs of non-disabled people
Hunt, Xanthe, Swartz, Leslie, Carew, Mark, Braathen, Stine Hellum, Chiwaula, Mussa and Rohleder, P. 2017. The sexual and reproductive rights and benefit derived from sexual and reproductive health services of people with physical disabilities in South Africa: beliefs of non-disabled people. Reproductive Health Matters. 25 (50), pp. 66-79. https://doi.org/10.1080/09688080.2017.1332949
A qualitative study of the emotional coping and support needs of children living with a parent with a brain injury
Rohleder, P., Lambie, John and Hale, Emily 2016. A qualitative study of the emotional coping and support needs of children living with a parent with a brain injury. Brain Injury. 31 (2), pp. 199-207. https://doi.org/10.1080/02699052.2016.1225985
Taking into account the quality of the relationship in HIV disclosure
Smith, Charlotte, Cook, Rachel and Rohleder, P. 2016. Taking into account the quality of the relationship in HIV disclosure. AIDS and Behavior. 21 (1), pp. 106-117. https://doi.org/10.1007/s10461-016-1323-z
The sexual health knowledge of people with intellectual disabilities: A review.
Borawska-Charko, Magdalena, Rohleder, P. and Finlay, Mick, W. L. 2016. The sexual health knowledge of people with intellectual disabilities: A review. Sexuality Research and Social Policy. 14 (4), pp. 393-409. https://doi.org/10.1007/s13178-016-0267-4
A qualitative investigation into the HIV disclosure process within an intimate partnership: ‘the moment I realized that our relationship was developing into something serious, I just had to tell him’
Smith, Charlotte, Cook, Rachel and Rohleder, P. 2016. A qualitative investigation into the HIV disclosure process within an intimate partnership: ‘the moment I realized that our relationship was developing into something serious, I just had to tell him’. British Journal of Health Psychology. 22 (1), pp. 110-127. https://doi.org/10.1111/bjhp.12220
Othering, blame and shame when working with people living with HIV
Rohleder, P. 2015. Othering, blame and shame when working with people living with HIV. Psychoanalytic Psychotherapy.
‘Experience of sexual self-esteem among men living with HIV’
Rohleder, P., McDermott, Daragh and Cook, Rachel 2015. ‘Experience of sexual self-esteem among men living with HIV’. Journal of Health Psychology.
‘Disability and HIV in Africa: Breaking the barriers to sexual health care’
Rohleder, P. 2017. ‘Disability and HIV in Africa: Breaking the barriers to sexual health care’. Journal of Health Psychology. 22 (11), pp. 1405-1414. https://doi.org/10.1177/1359105316628738