Methodological and ethical challenges while conducting qualitative research on spirituality and end of life in a Muslim context: a guide to novice researchers

Article


Lalani, N. and Ali, G. 2020. Methodological and ethical challenges while conducting qualitative research on spirituality and end of life in a Muslim context: a guide to novice researchers. International Journal of Palliative Nursing. 26 (7), pp. 362-370. https://doi.org/10.12968/ijpn.2020.26.7.362
AuthorsLalani, N. and Ali, G.
Abstract

Spirituality could be understood as a personal belief, a relation with sacred, divine experience, a sense of purpose and meaning towards life, authenticity and connectedness. It is a continually evolving, highly complex, contextual, subjective, and sensitive construct. A continuous development is seen around understanding about spirituality and spiritual concepts, such as spiritual experiences, spiritual pain and spiritual distress, especially among patients and families at the end of life. The concepts, values, attitudes, and beliefs around spirituality, spiritual needs and expressions vary among different individuals, cultures, and religions. There is a dearth of literature around spirituality, especially among Muslim patients and families at the end of life. The complexities around the concept of spirituality in the literature raise several ethical and methodological concerns for a novice researcher while planning and conducting a study on spirituality during end-of-life care in a hospice setting, especially among a Muslim population. This paper aims to share some of the methodological and ethical challenges that can be faced by qualitative researchers while conducting research around spirituality and end-of-life care in an Islamic/Muslim context. Major challenges include defining the term spirituality, spirituality and culture, communication, power relations, language and translation, recruitment and selection of the participants, emotional distress, and reflexivity and reciprocity. Having an in-depth understanding of these challenges can guide researchers to address these issues adequately in their spirituality research in a Muslim context.

Journal International Journal of Palliative Nursing
Journal citation26 (7), pp. 362-370
ISSN1357-6321
Year2020
PublisherMark Allen Healthcare
Accepted author manuscript
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File Access Level
Anyone
Digital Object Identifier (DOI)https://doi.org/10.12968/ijpn.2020.26.7.362
Publication dates
Online28 Oct 2020
Print02 Oct 2020
Publication process dates
Deposited17 Jan 2022
Copyright holder© 2020 MA Healthcare Limited
Additional information

This document is the Accepted Manuscript version of a Published Work that appeared in final form in International Journal of Palliative Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://doi.org/10.12968/ijpn.2020.26.7.362.

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