Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma
Article
Stewart, Amy C, Gannon, K., Beresford, Fran and Fleming, Louise 2018. Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma. Journal of Child Health Care. 22 (2), pp. 238-250. https://doi.org/10.1177/1367493517753082
Authors | Stewart, Amy C, Gannon, K., Beresford, Fran and Fleming, Louise |
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Abstract | This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. The findings suggest it is important for healthcare professionals to engage with patient’s preferences and priorities when introducing EMDs. |
Journal | Journal of Child Health Care |
Journal citation | 22 (2), pp. 238-250 |
ISSN | 1367-4935 |
Year | 2018 |
Publisher | SAGE Publications for Association of British Paediatric Nurses |
Accepted author manuscript | |
Digital Object Identifier (DOI) | https://doi.org/10.1177/1367493517753082 |
Web address (URL) | https://doi.org/10.1177/1367493517753082 |
Publication dates | |
Online | 11 Jan 2018 |
01 Jun 2018 | |
Publication process dates | |
Deposited | 22 Jan 2018 |
Copyright information | Stuart, et. al, Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma, Journal of Child Health Care, 22(2): pp. 238-250 . Copyright © 2017 Sage. Reprinted by permission of SAGE Publications. |
License | All rights reserved |
https://repository.uel.ac.uk/item/847z1
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