Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma

Article


Stewart, Amy C, Gannon, K., Beresford, Fran and Fleming, Louise 2018. Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma. Journal of Child Health Care. 22 (2), pp. 238-250.
AuthorsStewart, Amy C, Gannon, K., Beresford, Fran and Fleming, Louise
Abstract

This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. The findings suggest it is important for healthcare professionals to engage with patient’s preferences and priorities when introducing EMDs.

JournalJournal of Child Health Care
Journal citation22 (2), pp. 238-250
ISSN1367-4935
Year2018
PublisherSAGE Publications for Association of British Paediatric Nurses
Accepted author manuscript
Digital Object Identifier (DOI)doi:10.1177/1367493517753082
Web address (URL)https://doi.org/10.1177/1367493517753082
Publication dates
Online11 Jan 2018
Print01 Jun 2018
Publication process dates
Deposited22 Jan 2018
Copyright informationStuart, et. al, Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma, Journal of Child Health Care, 22(2): pp. 238-250 . Copyright © 2017 Sage. Reprinted by permission of SAGE Publications.
LicenseAll rights reserved
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