Experiences of UK African-Caribbean Prostate Cancer Survivors of Discharge to primary care

Article


Margariti, Charikleia, Gannon, K., Thompson, Rose, Walsh, J. and Green, James 2019. Experiences of UK African-Caribbean Prostate Cancer Survivors of Discharge to primary care. Ethnicity and Health.
AuthorsMargariti, Charikleia, Gannon, K., Thompson, Rose, Walsh, J. and Green, James
Abstract

Objective: Black men are three times more likely to develop prostate cancer (PCa), to do so at a younger age and to experience a more aggressive form than White men. This study aims to understand the experiences of African-Caribbean men with respect to their discharge to primary care following successful PCa treatment and the challenges associated with survivorship.
Design: Eight African-Caribbean men, who had been successfully treated for PCa, were recruited through the charity BME Cancer Communities. They participated in a focus group, which took place on the premises of the charity and was audio-recorded. The recording was transcribed and the data were analysed employing thematic analysis.
Results: Three overarching themes were developed: Discharge - misconceptions and uncertainties; Survivorship - challenges and ways of coping; Black men and PCa: real and potential discrimination. Participants expressed concerns regarding the lack of information and clarity about what discharge meant, the quality of follow-up care, especially the levels of specialist knowledge among GPs, and the impact of side-effects, particularly erectile dysfunction (ED). Participants linked ED with stereotypes of Black male sexuality, particularly in relation to difficulties of expressing their emotions and psychological distress. African-Caribbean men face particular challenges in dealing with the side-effects of treatment for PCa, which are linked to socially-constructed ideas of masculinity.
Conclusion: There needs to be a greater focus in primary care on understanding these issues and providing individualised culturally-sensitive care. In particular, GPs should be aware of sensitivities concerning help-seeking related to culturally-mediated understandings of masculinity.

JournalEthnicity and Health
ISSN1355-7858
Year2019
PublisherTaylor & Francis
Digital Object Identifier (DOI)doi:10.1080/13557858.2019.1606162
Web address (URL)https://doi.org/10.1080/13557858.2019.1606162
Publication dates
Online15 Apr 2019
Publication process dates
Deposited03 May 2019
Accepted02 Apr 2019
Accepted02 Apr 2019
FunderIPSEN Ltd.
Barts Health NHS Trust
University of East London
IPSEN Ltd.
Barts Health NHS Trust
University of East London
Copyright information© 2019 Taylor & Francis. This is an Accepted Manuscript of an article published by Taylor & Francis in Ethnicity and Health on 15/04/2019, available online: http://www.tandfonline.com/10.1080/13557858.2019.1606162.
Page rangeIn Press
LicenseAll rights reserved (under embargo)
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