Experiences of adolescent lung transplant recipients: A qualitative study

Article


Anderson, S. M., Wray, J., Ralph, A., Spencer, H., Lunnon-Wood, T. and Gannon, K. 2017. Experiences of adolescent lung transplant recipients: A qualitative study. Pediatric Transplantation. 21 (3), p. e12878. https://doi.org/10.1111/petr.12878
AuthorsAnderson, S. M., Wray, J., Ralph, A., Spencer, H., Lunnon-Wood, T. and Gannon, K.
Abstract

Many young transplant recipients experience psychological distress and adjustment difficulties, yet there is little research investigating lung transplantation from the recipients’ perspective. This qualitative study aimed to explore experiences of young people who underwent lung transplantation. Semi-structured interviews were conducted with six lung transplant recipients (aged 15-18). Interviews were analysed using IPA, a qualitative research approach examining how people make sense of their major life experiences. The analysis revealed three master themes: “Living with Dodgy Lungs” outlined how participants dealt with their experiences, managing through accepting or discussing their feelings with others, although talking was often difficult. “The Big Deal” reflected participants’ experiences of the process, their expectations, and the contrast of their lives pre- and post-transplant. Inherent in their accounts was the profound meaning ascribed to transplantation, the emotional turmoil, and impact on their lives. “A Sense of Self” illustrated participants’ developing identities within their social contexts and at times isolating experiences. The results highlight key areas where adolescent lung transplant recipients could be supported by clinicians, enabling the promotion of psychological well-being. Examples include supporting identity integration post-transplant, facilitating social inclusion, considering alternative means of support, and involving adolescents in healthcare decisions.

JournalPediatric Transplantation
Journal citation21 (3), p. e12878
ISSN13973142
Year2017
PublisherWiley for International Pediatric Transplant Association
Accepted author manuscript
License
Digital Object Identifier (DOI)https://doi.org/10.1111/petr.12878
Web address (URL)https://doi.org/10.1111/petr.12878
Publication dates
Online01 Feb 2017
Publication process dates
Deposited22 Jan 2018
Accepted01 Dec 2016
Accepted01 Dec 2016
Copyright informationThis is the peer reviewed version of the following article: Anderson, et. al., 2017, Experiences of adolescent lung transplant recipients: A qualitative study, which has been published in final form at https://doi.org/10.1111/petr.12878. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Permalink -

https://repository.uel.ac.uk/item/84x37

Download files


Accepted author manuscript
Experiences of Adolescent Lung Transplant Recipients - A Qualitative Study. Accepted version.pdf
License: Wiley Terms and Conditions for Use of Self-Archived Versions

  • 200
    total views
  • 501
    total downloads
  • 0
    views this month
  • 2
    downloads this month

Export as

Related outputs

Challenges faced by mental health interpreters in East London: An interpretative phenomenological analysis
Jidong, D. E., Tribe, R. and Gannon, K. 2020. Challenges faced by mental health interpreters in East London: An interpretative phenomenological analysis. Counselling Psychology Review. 35 (2), pp. 40-51.
GP experience and understandings of providing follow‐up care in prostate cancer survivors in England
Margariti, C., Gannon, K. N., Walsh, J. J. and Green, J. S. A. 2020. GP experience and understandings of providing follow‐up care in prostate cancer survivors in England. Health and Social Care in the Community. 28 (5), pp. 1468-1478. https://doi.org/10.1111/hsc.12969
How do new/recent mothers experience unwanted harm thoughts related to their newborn? A thematic analysis
Boyd, C. and Gannon, K. 2019. How do new/recent mothers experience unwanted harm thoughts related to their newborn? A thematic analysis. Journal of Reproductive and Infant Psychology. 39 (21), pp. 153-165. https://doi.org/10.1080/02646838.2019.1657819
Experiences of UK African-Caribbean Prostate Cancer Survivors of Discharge to primary care
Margariti, Charikleia, Gannon, K., Thompson, Rose, Walsh, J. and Green, James 2019. Experiences of UK African-Caribbean Prostate Cancer Survivors of Discharge to primary care. Ethnicity and Health. 26 (8), pp. 1115-1129. https://doi.org/10.1080/13557858.2019.1606162
Early Improvement in Eating Attitudes during Cognitive Behavioural Therapy for Eating Disorders: The Impact of Personality Disorder Cognitions
Park, Emma C., Waller, Glenn and Gannon, K. 2013. Early Improvement in Eating Attitudes during Cognitive Behavioural Therapy for Eating Disorders: The Impact of Personality Disorder Cognitions. Behavioural and Cognitive Psychotherapy. 42 (02), pp. 224-237. https://doi.org/10.1017/S1352465812001117
Evidence-Based Practice - the Ethical Dimension
Gannon, K. 2015. Evidence-Based Practice - the Ethical Dimension. in: Tribe, Rachel and Morrissey, Jean (ed.) Handbook of Professional and Ethical Practice for Psychologists, Counsellors and Psychotherapists Routledge.
Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma
Stewart, Amy C, Gannon, K., Beresford, Fran and Fleming, Louise 2018. Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma. Journal of Child Health Care. 22 (2), pp. 238-250. https://doi.org/10.1177/1367493517753082
The experiences of high intensity therapists delivering cognitive behavioural therapy to people with intellectual disabilities
Marwood, Hayley, Chinn, Deborah, Gannon, K. and Scior, Katrina 2017. The experiences of high intensity therapists delivering cognitive behavioural therapy to people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities. 31 (1), pp. 76-86. https://doi.org/10.1111/jar.12328
How do nurses experience working with adolescents with a diagnosis of ‘personality disorder’ or ‘emerging personality disorder'?
Reiss, R. and Gannon, K. 2015. How do nurses experience working with adolescents with a diagnosis of ‘personality disorder’ or ‘emerging personality disorder'? Journal of Psychiatric and Mental Health Nursing. 22 (4), pp. 244-250.
Belongings Beyond Borders: Reflections of Young Refugees on Their Relationships with Location
Muir, Jessica and Gannon, K. 2015. Belongings Beyond Borders: Reflections of Young Refugees on Their Relationships with Location. Journal of Community & Applied Social Psychology. https://doi.org/10.1002/casp.2260
“Should I really be here?” Exploring the relationship between Black men’s conceptions of wellbeing, subject positions and help-seeking behaviour
Myrie, Chanelle V. and Gannon, K. 2013. “Should I really be here?” Exploring the relationship between Black men’s conceptions of wellbeing, subject positions and help-seeking behaviour. Diversity and Equality in Health and Care. 10 (1), pp. 1-22.
Beyond evidence-based practice: rethinking the relationship between research, theory and practice
Harper, D., Gannon, K. and Robinson, M. 2013. Beyond evidence-based practice: rethinking the relationship between research, theory and practice. in: Bayne, Rowan and Jinks, Gordon (ed.) Applied psychology: research, training and practice, second edition London SAGE.
Re-constructing masculinity following radical prostatectomy for prostate cancer
Gannon, K., Guerro-Blanco, Monica, Patel, Anup and Abel, Paul 2010. Re-constructing masculinity following radical prostatectomy for prostate cancer. Aging Male. 13 (4), pp. 258-264.
The experiences of young people with epidermolysis bullosa simplex: a qualitative study
Williams, E. Felicity, Gannon, K. and Soon, Kristina 2011. The experiences of young people with epidermolysis bullosa simplex: a qualitative study. Journal of Health Psychology. 16 (5), pp. 701-710.