Experiences of adolescent lung transplant recipients: A qualitative study

Article


Anderson, S. M., Wray, J., Ralph, A., Spencer, H., Lunnon-Wood, T. and Gannon, K. 2017. Experiences of adolescent lung transplant recipients: A qualitative study. Pediatric Transplantation. 21 (3), p. e12878.
AuthorsAnderson, S. M., Wray, J., Ralph, A., Spencer, H., Lunnon-Wood, T. and Gannon, K.
Abstract

Many young transplant recipients experience psychological distress and adjustment difficulties, yet there is little research investigating lung transplantation from the recipients’ perspective. This qualitative study aimed to explore experiences of young people who underwent lung transplantation. Semi-structured interviews were conducted with six lung transplant recipients (aged 15-18). Interviews were analysed using IPA, a qualitative research approach examining how people make sense of their major life experiences. The analysis revealed three master themes: “Living with Dodgy Lungs” outlined how participants dealt with their experiences, managing through accepting or discussing their feelings with others, although talking was often difficult. “The Big Deal” reflected participants’ experiences of the process, their expectations, and the contrast of their lives pre- and post-transplant. Inherent in their accounts was the profound meaning ascribed to transplantation, the emotional turmoil, and impact on their lives. “A Sense of Self” illustrated participants’ developing identities within their social contexts and at times isolating experiences. The results highlight key areas where adolescent lung transplant recipients could be supported by clinicians, enabling the promotion of psychological well-being. Examples include supporting identity integration post-transplant, facilitating social inclusion, considering alternative means of support, and involving adolescents in healthcare decisions.

JournalPediatric Transplantation
Journal citation21 (3), p. e12878
ISSN13973142
Year2017
PublisherWiley for International Pediatric Transplant Association
Accepted author manuscript
License
Digital Object Identifier (DOI)doi:10.1111/petr.12878
Web address (URL)https://doi.org/10.1111/petr.12878
Publication dates
Online01 Feb 2017
Publication process dates
Deposited22 Jan 2018
Accepted01 Dec 2016
Accepted01 Dec 2016
Copyright informationThis is the peer reviewed version of the following article: Anderson, et. al., 2017, Experiences of adolescent lung transplant recipients: A qualitative study, which has been published in final form at https://doi.org/10.1111/petr.12878. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
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