Improving the reading skills of young people with Duchenne muscular dystrophy in preparation for adulthood

Article


Hoskin, J. and Fawcett, Angela 2014. Improving the reading skills of young people with Duchenne muscular dystrophy in preparation for adulthood. British Journal of Special Education. 41 (2), pp. 172-190.
AuthorsHoskin, J. and Fawcett, Angela
Abstract

Duchenne muscular dystrophy (DMD) is a progressive genetic condition that affects both muscle and brain. Children with DMD are at risk of psycho-social difficulties such as poor academic achievement and behavioural and socio-emotional problems. This article by Janet Hoskin and Angela Fawcett, both from the University of Swansea, describes how 34 participants with DMD took part in a 36-week online literacy intervention which was delivered in partnership between home and school. The key objective was to improve reading skill. Participants were re-tested at 36 weeks for single word and text level reading, comprehension, fluency, processing and timed single word reading. Pre and post results indicated that children who followed the intervention for 36 weeks made significant improvement in their single word reading (p = <0.0001), timed single word reading (p = <0.0001) and text level reading (p = <0.004). They also made significant improvement in their fluency and comprehension scores. The results showed that children with DMD and related literacy difficulties benefit from a regular, structured and systematic synthetic phonics programme. With young people with DMD increasingly living into adulthood, early literacy intervention is particularly important to ensure optimum career and training opportunities.

KeywordsDuchenne muscular dystrophy; cognitive difficulties; literacy intervention; dyslexia; procedural and declarative learning
JournalBritish Journal of Special Education
Journal citation41 (2), pp. 172-190
ISSN0952-3383
1467-8578
Year2014
PublisherWiley
Accepted author manuscript
License
CC BY-NC
Digital Object Identifier (DOI)doi:10.1111/1467-8578.12062
Web address (URL)http://onlinelibrary.wiley.com/doi/10.1111/1467-8578.12062/full
Publication dates
Print13 Jun 2014
Publication process dates
Deposited15 May 2017
AcceptedMar 2014
Copyright information© 2014 NASEN
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