Report on the Psycho-Social Needs and Support in Duchenne Muscular Dystrophy: The ‘Cinderella’ of DMD Care

Project report


Hoskin, J. 2022. Report on the Psycho-Social Needs and Support in Duchenne Muscular Dystrophy: The ‘Cinderella’ of DMD Care. Duchenne UK.
AuthorsHoskin, J.
TypeProject report
Year2022
PublisherDuchenne UK
School of Education & Communities, University of East London
Page range1-17
File
License
File Access Level
Anyone
Publication dates
PrintJan 2022
Publication process dates
Deposited10 Jan 2024
Copyright holder© 2022, The Author
Permalink -

https://repository.uel.ac.uk/item/8x1wv

Download files


File
MY Final DUK Report on Psycho-social Needs in DMD.pdf
License: All rights reserved
File access level: Anyone

  • 42
    total views
  • 12
    total downloads
  • 8
    views this month
  • 1
    downloads this month

Export as

Related outputs

Workshop report: Workshop on psychiatric prescribing and psychology testing and intervention in children and adults with Duchenne muscular dystrophy
Bouquillon, L., Bindman, D., Hendriksen, J., Collin, P., Hoskin, J., Conn, R., Geagan, C. and Quinlivan, R. 2024. Workshop report: Workshop on psychiatric prescribing and psychology testing and intervention in children and adults with Duchenne muscular dystrophy. Research Ideas and Outcomes. 10 (Art. e119243). https://doi.org/10.3897/rio.10.e119243
Entering Adulthood with Duchenne Muscular Dystrophy: A Pathfinders Report
Glover, S., Hale, J., Roberts, M., Bosanquet, J., Dack, R., Hoskin, J., Peat, G. and Abbott, D. 2023. Entering Adulthood with Duchenne Muscular Dystrophy: A Pathfinders Report. Pathfinders: Neuromuscular Alliance.
Education, Health and Care Plans
Arnold, L. and Hoskin, J. 2021. Education, Health and Care Plans. in: Beaton, M. C., Codina, G. N. and Wharton, J. C. (ed.) Leading on Inclusion: The Role of the SENCO Taylor & Francis (Routledge).
Accessible Housing Campaign Report
Rey-Hastie, J. and Hoskin, J. 2021. Accessible Housing Campaign Report. Pathfinders: Neuromuscular Alliance.
Troubling norms? Adults and teenagers with a life-limiting impairment in Denmark and England talk about their lives, support and future plans
Hoskin, J. 2021. Troubling norms? Adults and teenagers with a life-limiting impairment in Denmark and England talk about their lives, support and future plans. European Journal of Special Needs Education. 36 (3), pp. 329-343. https://doi.org/10.1080/08856257.2020.1754545
Aspiration, austerity and ableism: to what extent are the 2014 SEND reforms supporting young people with a life‐limiting impairment and their families to get the lives they want?
Hoskin, J. 2019. Aspiration, austerity and ableism: to what extent are the 2014 SEND reforms supporting young people with a life‐limiting impairment and their families to get the lives they want? British Journal of Special Education. 46 (3), pp. 265-291. https://doi.org/10.1111/1467-8578.12271
Psychosocial Management of the Patient With Duchenne Muscular Dystrophy
Colvin, M. K., Poysky, J., Kinnett, K., Damiani, M., Gibbons, M., Hoskin, J., Moreland, S., Trout, C. J. and Weidner, N. 2018. Psychosocial Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics. 142 (Supplement 2), pp. S99-S109. https://doi.org/10.1542/peds.2018-0333L
Improving the reading skills of young people with Duchenne muscular dystrophy in preparation for adulthood
Hoskin, J. and Fawcett, Angela 2014. Improving the reading skills of young people with Duchenne muscular dystrophy in preparation for adulthood. British Journal of Special Education. 41 (2), pp. 172-190. https://doi.org/10.1111/1467-8578.12062
Book Reviews
Hoskin, J. and Robertson, G. 2017. Book Reviews. Research in Teacher Education. 7 (1), pp. 33-34. https://doi.org/10.15123/uel.891xx
Research in Teacher Education: Volume 7, No.1, May 2017
Garby-Czerniawski, G., Hudson, A., Smith, M., Bell, C., Baker, A., Archer, L., Hoskin, J. and Robertson, G. 2017. Research in Teacher Education: Volume 7, No.1, May 2017. The School of Education and Communities, University of East London. https://doi.org/10.15123/uel.891x1
Taking charge and letting go: exploring the ways a Transition to Adulthood project for teenagers with Duchenne muscular dystrophy has supported parents to prepare for the future
Hoskin, J. 2017. Taking charge and letting go: exploring the ways a Transition to Adulthood project for teenagers with Duchenne muscular dystrophy has supported parents to prepare for the future. British Journal of Special Education. 44 (2), pp. 165-185. https://doi.org/10.1111/1467-8578.12173