Psychosocial Management of the Patient With Duchenne Muscular Dystrophy

Article


Colvin, M. K., Poysky, J., Kinnett, K., Damiani, M., Gibbons, M., Hoskin, J., Moreland, S., Trout, C. J. and Weidner, N. 2018. Psychosocial Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics. 142 (Supplement 2), pp. S99-S109. https://doi.org/10.1542/peds.2018-0333L
AuthorsColvin, M. K., Poysky, J., Kinnett, K., Damiani, M., Gibbons, M., Hoskin, J., Moreland, S., Trout, C. J. and Weidner, N.
Abstract

In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, that guidance was updated. In the intervening years, a new emphasis was placed on studying and addressing the psychosocial issues that affect patients with DMD, driven in part by improved patient survival. Once viewed as ancillary to managing the significant medical needs of patients with DMD, it is now standard practice to integrate psychosocial management into the multidisciplinary management of the disease. It is also increasingly recognized that neurodevelopmental disorders in DMD occur at a higher rate than what was previously understood and that these disorders warrant early and intensive intervention. In this article, we expand on the content found in the 2018 DMD Care Considerations.

JournalPediatrics
Journal citation142 (Supplement 2), pp. S99-S109
ISSN0031-4005
Year2018
PublisherAmerican Academy of Pediatrics
Digital Object Identifier (DOI)https://doi.org/10.1542/peds.2018-0333L
Web address (URL)https://doi.org/10.1542/peds.2018-0333L
Publication dates
Print01 Oct 2018
Publication process dates
Accepted26 Jul 2018
Deposited06 Dec 2019
Funder Centers for Disease Control and Prevention
Copyright holder© 2018 by the American Academy of Pediatrics
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