Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium [version 1; peer review: 1 approved with reservations]

Article

Del Bianco, T., Lockwood Estrin, G., Lautarescu, A., Oakley, B. F., Eaton, E., Terčon, J., Douglas, S., Plas, J. R. D., Belton, D., Loth, E., Doherty, M. and Jones, E. J. H. 2025. Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium [version 1; peer review: 1 approved with reservations]. Open Research Europe. p. In press (Open Peer Review). https://doi.org/10.12688/openreseurope.19394.1
AuthorsDel Bianco, T., Lockwood Estrin, G., Lautarescu, A., Oakley, B. F., Eaton, E., Terčon, J., Douglas, S., Plas, J. R. D., Belton, D., Loth, E., Doherty, M. and Jones, E. J. H.
Abstract

Background
Due to the increased emphasis on co-produced and community led research, neurodiversity within research communities has sparked interest, particularly within the context of autism research. This study investigates the presence of neurodivergent researchers within a neuroscience research consortium, with a particular focus on autism prevalence.

Methods
Using survey data collected from active contributors to the consortium, we examined the self-reported neurodivergent status of researchers, including formal diagnoses of autism, ongoing diagnostic processes, and self-identification as neurodivergent.

Results
A proportion of the surveyed researchers reported formal diagnoses or self-identification as autistic (23%), that were significantly more frequent at career stages below and including postdoctoral roles (Chi-Square p-value = 0.01). Further, we identified an association between neurodivergence and a diagnosis of a mental health condition among researchers (Coef. = 1.93, p-value = 0.002), highlighting the importance of accommodating neurodiversity within research environments.

Conclusions
This study underscores the need for inclusivity and support for neurodivergent researchers, particularly in the context of neuroscience that does or does not yet embed participatory research initiatives. By amplifying the voices of neurodivergent researchers, research communities can enhance the equity and impact of their outcomes and foster better public engagement by sharing experiences and understanding the needs of community members.

JournalOpen Research Europe
Journal citationp. In press (Open Peer Review)
ISSN2732-5121
Year2025
PublisherTaylor & Francis for the European Commission
Publisher's version
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File Access Level
Anyone
Digital Object Identifier (DOI)https://doi.org/10.12688/openreseurope.19394.1
Publication process dates
Deposited09 May 2025
Copyright holder© 2025 The Authors
Additional information

Del Bianco T, Lockwood Estrin G, Lautarescu A et al. Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium [version 1; peer review: 1 approved with reservations]. Open Res Europe 2025, 5:120 (https://doi.org/10.12688/openreseurope.19394.1)

NOTE: It is important to ensure the information in square brackets after the title is included in this citation.

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