How do daughters experience having a mother with dementia?

Article

Finill, C. and Tribe, R. 2017. How do daughters experience having a mother with dementia? Counselling Psychology Review. 32 (2), pp. 4-13.
AuthorsFinill, C. and Tribe, R.
Abstract

Background/Objectives:
There is a paucity of research on the experience of daughters of mothers with
dementia, who do not live together. This research explores how daughters
experience having a mother with dementia.
Method: Seven semi-structured interviews with daughters of mothers with dementia,
were conducted. Interview accounts were analysed using thematic analysis.
Results: The main themes of Bewilderment and Fear, and Transformed
Relationships were identified. The analysis indicated that the experiences described
were, at times, distressing for the daughters and there was a perceived lack of
professional help to support both mothers and daughters through the changes.
However, the analysis also indicated that some daughters experienced
transformative ways to make thoughtful new connections and aspects of the
relationship with their mothers were described as having improved.
Conclusions: It is proposed that it could be helpful if professional services
recognised that having a mother with dementia can be a challenging experience,
even if mothers and daughters do not live together. It is also proposed that services
need to continue to be improved for both mothers and daughters.

KeywordsDementia; Mother-Daughter Relationships; Fear; Transformed relationships; New Connections
JournalCounselling Psychology Review
Journal citation32 (2), pp. 4-13
ISSN0269-6975
Year2017
PublisherThe British Psychological Society
Accepted author manuscript
Web address (URL)https://shop.bps.org.uk/publications/publication-by-series/counselling-psychology-review/counselling-psychology-review-vol-32-no-2-june-2017.html
Publication dates
PrintJun 2017
Publication process dates
Deposited22 Jun 2017
AcceptedJun 2017
Copyright informationThis is a pre-publication version of the following article: Finill, C. & Tribe, R. (2017) How do women experience having a mother with dementia? A thematic analysis. Counselling Psychology Review, 32, 2, 4-13.
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Tribe, R. and Thompson, Kate 2009. Opportunity for development or necessary nuisance? The case for viewing working with interpreters as a bonus in therapeutic work. International Journal of Migration, Health and Social Care. 5 (2), pp. 4-12.
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Tribe, R. 1999. Bridging the gap or damming the flow? Some observations on using interpreters/bicultural workers when working with refugee clients, many of whom have been tortured. British Journal of Medical Psychology. 72 (4), pp. 567-576.
Mental health of refugees and asylum-seekers
Tribe, R. 2002. Mental health of refugees and asylum-seekers. Advances in Psychiatric Treatment. 8 (4), pp. 240-247.
Unequal care: an introduction to understanding UK policy and the impact on asylum-seeking children
Lane, Pauline and Tribe, R. 2006. Unequal care: an introduction to understanding UK policy and the impact on asylum-seeking children. International Journal of Migration, Health and Social Care. 2 (2), pp. 7-14.
Refugees and asylum seekers
Tribe, R. and Patel, N. 2007. Refugees and asylum seekers. The Psychologist. 20 (3), pp. 149-151.
Working with interpreters
Tribe, R. 2007. Working with interpreters. The Psychologist. 20 (3), pp. 159-161.
Exploring the Three-Way Relationship in Therapeutic Work with Interpreters
Tribe, R. and Thompson, Kate 2009. Exploring the Three-Way Relationship in Therapeutic Work with Interpreters. International Journal of Migration, Health and Social Care. 5 (2), pp. 13-21.
Working with Interpreters in Health Settings: Guidelines for Psychologists
Tribe, R., Thompson, Kate and British Psychological Society, Professional Practice Board 2008. Working with Interpreters in Health Settings: Guidelines for Psychologists. Leicester The British Psychological Society.
Health Pluralism: A More Appropriate Alternative to Western Models of Therapy in the Context of the Civil Conflict and Natural Disaster in Sri Lanka?
Tribe, R. 2007. Health Pluralism: A More Appropriate Alternative to Western Models of Therapy in the Context of the Civil Conflict and Natural Disaster in Sri Lanka? Journal of Refugee Studies. 20 (1), pp. 21-36. https://doi.org/10.1093/jrs/fel031
Good practice issues in working with interpreters in mental health
Tribe, R. and Morrissey, Jean 2004. Good practice issues in working with interpreters in mental health. Intervention: Journal of Mental Health and Psychosocial Support in Conflict Affected Areas. 2 (2), pp. 129-142.