“It’s my diabetes”: Co-production in practice with young people in delivering a ‘perfect' care pathway for diabetes

Article


Sharpe, D., Green, Emma, Harden, A., Freer, Rachelle, Moodambail, Abdul and Towndrow, Steven 2018. “It’s my diabetes”: Co-production in practice with young people in delivering a ‘perfect' care pathway for diabetes. Research for All. 2 (2), pp. 289-303.
AuthorsSharpe, D., Green, Emma, Harden, A., Freer, Rachelle, Moodambail, Abdul and Towndrow, Steven
Abstract

This paper considers how young people can help commissioners and providers better
understand and address the options and barriers of delivering a perfect care pathway. This
applied health study was funded by the National Institute of Health Research (NIHR) in England and a local clinical commissioning group (CCG) responsible for the organisation and delivery of NHS services in a socially deprived, ethnically diverse urban locality. . The research team was mixed –in terms of age, ethnicity, faith-identities and backgrounds - and worked together over one year to co-produce commissioning guidance. Guidance is intended for use by clinical commissioning groups to support them in commissioning health services. Our goal was to work
with young people to help us understand the options and barriers they face when given a diagnosis of diabetes and using health services. While our health partners can provide the latest
medical and academic input in to managing diabetes, young people have first-hand experience of managing diabetes, the highs and the lows, and only they can provide the inspiration for what would make the service better, now and in the future. With this focus in mind young people joined the research team to help shape and implement new commissioning guidance. This paper offers the opportunity to reflect on the strengths and weaknesses in involving young people in health
service design.

JournalResearch for All
Journal citation2 (2), pp. 289-303
ISSN2399-8121
Year2018
PublisherUCL IOE Press
Accepted author manuscript
File Access Level
Repository staff only
Publisher's version
License
Digital Object Identifier (DOI)doi:10.18546/RFA.02.2.07
Web address (URL)https://doi.org/10.18546/RFA.02.2.07
Publication dates
Print01 Jul 2018
Publication process dates
Deposited05 Jun 2018
Accepted2018
Accepted2018
FunderNational Institute for Health Research
Care North Thames at Barts Health NHS Trust
Copyright information© 2018 The authors
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