“It’s my diabetes”: Co-production in practice with young people in delivering a ‘perfect' care pathway for diabetes

Article

Sharpe, D., Green, Emma, Harden, A., Freer, Rachelle, Moodambail, Abdul and Towndrow, Steven 2018. “It’s my diabetes”: Co-production in practice with young people in delivering a ‘perfect' care pathway for diabetes. Research for All. 2 (2), pp. 289-303. https://doi.org/10.18546/RFA.02.2.07
AuthorsSharpe, D., Green, Emma, Harden, A., Freer, Rachelle, Moodambail, Abdul and Towndrow, Steven
Abstract

This paper considers how young people can help commissioners and providers better
understand and address the options and barriers of delivering a perfect care pathway. This
applied health study was funded by the National Institute of Health Research (NIHR) in England and a local clinical commissioning group (CCG) responsible for the organisation and delivery of NHS services in a socially deprived, ethnically diverse urban locality. . The research team was mixed –in terms of age, ethnicity, faith-identities and backgrounds - and worked together over one year to co-produce commissioning guidance. Guidance is intended for use by clinical commissioning groups to support them in commissioning health services. Our goal was to work
with young people to help us understand the options and barriers they face when given a diagnosis of diabetes and using health services. While our health partners can provide the latest
medical and academic input in to managing diabetes, young people have first-hand experience of managing diabetes, the highs and the lows, and only they can provide the inspiration for what would make the service better, now and in the future. With this focus in mind young people joined the research team to help shape and implement new commissioning guidance. This paper offers the opportunity to reflect on the strengths and weaknesses in involving young people in health
service design.

JournalResearch for All
Journal citation2 (2), pp. 289-303
ISSN2399-8121
Year2018
PublisherUCL IOE Press
Accepted author manuscript
File Access Level
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Digital Object Identifier (DOI)https://doi.org/10.18546/RFA.02.2.07
Web address (URL)https://doi.org/10.18546/RFA.02.2.07
Publication dates
Print01 Jul 2018
Publication process dates
Deposited05 Jun 2018
Accepted2018
Accepted2018
FunderNational Institute for Health Research
Care North Thames at Barts Health NHS Trust
Copyright information© 2018 The authors
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O'Mara-Eves, A, Brunton, Ginny, McDaid, G, Oliver, Sandy, Kavanagh, Josephine, Jamal, F., Matosevic, T, Harden, A. and Thomas, James 2013. Community engagement to reduce inequalities in health: a systematic review, meta-analysis and economic analysis. Public Health Research. 1 (4).
An economic model of school-based behavioral interventions to prevent sexually transmitted infections
Cooper, Keith, Shepherd, Jonathan, Picot, Jo, Jones, Jeremy, Kavanagh, Josephine, Harden, A., Barnett-Page, Elaine, Clegg, Andrew, Hartwell, Debbie, Frampton, Geoff and Price, Alison 2012. An economic model of school-based behavioral interventions to prevent sexually transmitted infections. International Journal of Technology Assessment in Health Care. 28 (04), pp. 407-414.
The school environment and student health: a systematic review and meta-ethnography of qualitative research
Jamal, F., Fletcher, Adam, Harden, A., Wells, Helene, Thomas, James and Bonell, Chris 2013. The school environment and student health: a systematic review and meta-ethnography of qualitative research. BMC Public Health. 13 (1), p. 798.
Predictors of the timing of initiation of antenatal care in an ethnically diverse urban cohort in the UK
Cresswell, Jenny A, Yu, Ge, Hatherall, B., Morris, Joanne, Jamal, Farah, Harden, A. and Renton, A. 2013. Predictors of the timing of initiation of antenatal care in an ethnically diverse urban cohort in the UK. BMC Pregnancy and Childbirth. 13 (1), p. 103.
Systematic review of the effects of schools and school environment interventions on health: evidence mapping and synthesis
Bonell, C., Farah, Jamal, Harden, A., Wells, H., Parry, W., Fletcher, A., Petticrew, M., Thomas, J., Whitehead, M., Campbell, R., Murphy, S. and Moore, L. 2013. Systematic review of the effects of schools and school environment interventions on health: evidence mapping and synthesis. Public Health Research. 1 (1).
Consulting with young people to inform systematic reviews: an example from a review on the effects of schools on health
Jamal, F. and Harden, A. 2013. Consulting with young people to inform systematic reviews: an example from a review on the effects of schools on health. UEL Research and Knowledge Exchange Conference 2013. University of East London, London 26 Jun 2013 London University of East London.
Getting older and living longer with HIV: Findings from a pilot study conducted in Newham
Foster, Nena, Freeman, Emily, Harden, A., Tobi, Patrick and Fakoya, Ade 2012. Getting older and living longer with HIV: Findings from a pilot study conducted in Newham. UEL Research and Knowledge Exchange Conference 2012. University of East London, London 03 May 2012 London University of East London.
'It takes a lot to build trust’. Recognition and Telling: Developing Earlier Routes to Help for Children and Young People
Cossar, J., Brandon, B., Bailey, S., Belderson, P., Biggart, L. and Sharpe, D. 2013. 'It takes a lot to build trust’. Recognition and Telling: Developing Earlier Routes to Help for Children and Young People. Office of the Children’s Commissioner.
The school environment and student health: a systematic review and meta-ethnography of qualitative research
Jamal, Farah, Fletcher, Adam, Harden, A., Wells, Helene, Thomas, James and Bonell, Chris 2013. The school environment and student health: a systematic review and meta-ethnography of qualitative research. BMC Public Health. 13 (1), p. 798.
The contribution of a social enterprise to the building of social capital in a disadvantaged urban area of London
Bertotti, M., Harden, A., Renton, A. and Sheridan, K. 2012. The contribution of a social enterprise to the building of social capital in a disadvantaged urban area of London. Community Development Journal. 47 (2), pp. 168-183.
A scoping review of the evidence relevant to life checks for young people aged 9 to 14 years
Harden, A. 2007. A scoping review of the evidence relevant to life checks for young people aged 9 to 14 years. London EPPI-Centre, Social Science Research Unit, Institute of Education, University of London.
Thematic synthesis
Harden, A. and Thomas, James 2008. Thematic synthesis. ESRC Research Methods Festival. St Catherine’s College, Oxford 30 Jun - 03 Jul 2008 Southampton ESRC National Centre for Research Methods.
Testing and building theories: mixed methods synthesis
Harden, A. 2008. Testing and building theories: mixed methods synthesis. ESRC Research Methods Festival. St Catherine’s College, Oxford 30 Jun - 03 Jul 2008 Southampton ESRC National Centre for Research Methods.
Critical appraisal and qualitative research: exploring sensitivity analysis
Harden, A. 2008. Critical appraisal and qualitative research: exploring sensitivity analysis. ESRC Research Methods Festival. St Catherine’s College, Oxford 30 Jun - 03 Jul 2008
Social and environmental interventions to reduce childhood obesity: a systematic map of reviews
Harden, A. 2008. Social and environmental interventions to reduce childhood obesity: a systematic map of reviews. London EPPI-Centre, Social Science Research Unit, Institute of Education, University of London.
Including diverse groups of children and young people in health promotion and public health research: a review of methodology and practice
Harden, A. 2008. Including diverse groups of children and young people in health promotion and public health research: a review of methodology and practice. London EPPI-Centre, Social Science Research Unit, Institute of Education, University of London.
Health promotion, inequalities and young people’s health: a systematic review of research
Harden, A. 2008. Health promotion, inequalities and young people’s health: a systematic review of research. London EPPI-Centre, Social Science Research Unit, Institute of Education, University of London.
A review of effectiveness, including cost effectiveness wherever possible, of commissioned healthy weight-related projects in City and Hackney: final report
Harden, A., Estacio, Emee Vida, Tobi, Patrick, Adams-Eaton, Faye, Bertotti, Marcello and Lais, Shahana 2009. A review of effectiveness, including cost effectiveness wherever possible, of commissioned healthy weight-related projects in City and Hackney: final report. London Institute of Health and Human Development, University of East London.
A project to assist Family Actions's Building Bridges practitioners with the use of the Index of Family Relations as an outcome measurement: final report
Harden, A., Lloyd-Reichling, E., Mcdermott, M., Potter, Sylvia and Sayeed, Zahirun 2009. A project to assist Family Actions's Building Bridges practitioners with the use of the Index of Family Relations as an outcome measurement: final report. London University of East London.
Methods for the thematic synthesis of qualitative research in systematic reviews
Thomas, James and Harden, A. 2008. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology. 8 (45), pp. 1471-2288.
The influence of environmental factors on the generalisability of public health research evidence: physical activity as a worked example
Watts, P., Phillips, Gemma, Harden, A. and Renton, A. 2011. The influence of environmental factors on the generalisability of public health research evidence: physical activity as a worked example. International Journal of Behavioural Nutrition and Physical Activity. 8 (1), pp. 1479-5868.
Creating and Maintaining a Healthy Stratford City: Principles and Practices for Success
Sampson, Alice, Harden, A., Brimicombe, A., Bertotti, Marcello, Lais, Shahana, Barrow-Guevera, Gail, Boniwell, Ilona, Joseph, Hipolina, Sheridan, Kevin, Adams-Eaton, Faye, Tobi, Patrick and Li, Yang 2010. Creating and Maintaining a Healthy Stratford City: Principles and Practices for Success. University of East London, Centre for Institutional Studies.
Protocol for a systematic review of the effects of schools and school-environment interventions on health: evidence mapping and syntheses
Harden, A. and Jamal, Farah 2011. Protocol for a systematic review of the effects of schools and school-environment interventions on health: evidence mapping and syntheses. BMC Public Health. 11 (453).
Integrating qualitative research with trials in systematic reviews
Thomas, James, Harden, A., Oakley, Ann, Oliver, Sandy, Sutcliffe, Katy, Rees, Rebecca, Brunton, Ginny and Kavanagh, Josephine 2004. Integrating qualitative research with trials in systematic reviews. British Medical Journal. 328 (7446), pp. 1010-1012.
Applying systematic review methods to studies of people’s views: an example from public health research
Harden, A., Garcia, Jo, Oliver, Sandy, Rees, Rebecca, Shepherd, Jonathan, Brunton, Ginny and Oakley, Ann 2004. Applying systematic review methods to studies of people’s views: an example from public health research. Journal of Epidemiology and Community Health. 58 (9), pp. 794-800.
A project to assist Family Action’s Building Bridges practitioners with the use of the Index of Family Relations as an outcome measurement (Final Report).
Harden, A., Lloyd-Reichling, E., Mcdermott, M., Potter, Sylvia and Sayeed, Zahirun 2009. A project to assist Family Action’s Building Bridges practitioners with the use of the Index of Family Relations as an outcome measurement (Final Report). Family Action, Institute of Health and Human Development and CASS School of Education, University of East London.
Teenage pregnancy and social disadvantage: systematic review integrating controlled trials and qualitative studies
Harden, A., Brunton, Ginny, Fletcher, Adam and Oakley, Ann 2009. Teenage pregnancy and social disadvantage: systematic review integrating controlled trials and qualitative studies. British Medical Journal. 339 (121).
Methods for the thematic synthesis of qualitative research in systematic reviews
Thomas, James and Harden, A. 2008. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology. 8 (45).