Using multimedia technology to enhance self-advocacy of people with intellectual disabilities: Introducing a theoretical framework for ‘Multimedia Advocacy’

Article

Watts, P., Kwiatkowska, G. and Minnion, A. 2023. Using multimedia technology to enhance self-advocacy of people with intellectual disabilities: Introducing a theoretical framework for ‘Multimedia Advocacy’. Journal of Applied Research in Intellectual Disabilities. 36 (4), pp. 739-749. https://doi.org/10.1111/jar.13107
AuthorsWatts, P., Kwiatkowska, G. and Minnion, A.
Abstract

Background:
Multimedia Advocacy is the use of digital technology for people with intellectual disabilities as means of developing identities, being heard, connecting to family and care networks and, advocating for change.

Methods:
We explore principles and theories that underpin Multimedia Advocacy, mapping disciplinary approaches that have influenced the concept and praxis.

Results:
We describe relevant theories from cultural and media studies, personal therapeutic practices, communication, universal design, and systemic adoption of technology. We discuss new ways of achieving person-centred working with digital technology. We aim to develop a stronger theory/practice dialogue between these disciplines.

Conclusions:
The theories described highlight the importance of embedding access and use of digital technology within everyday settings. Long-term implementation plans and buy-in from all organisational levels are required for Multimedia Advocacy tools to be embraced by health and social care systems so the voice of an individual is included and genuine person-centred practice is achieved.

JournalJournal of Applied Research in Intellectual Disabilities
Journal citation36 (4), pp. 739-749
ISSN1360-2322
Year2023
PublisherWiley
Publisher's version
License
File Access Level
Anyone
Digital Object Identifier (DOI)https://doi.org/10.1111/jar.13107
Publication dates
Online16 Apr 2023
PrintJul 2023
Publication process dates
Accepted05 Apr 2023
Deposited20 Apr 2023
Copyright holder© 2023, The Authors
Permalink -

https://repository.uel.ac.uk/item/8vxwy

Log in to edit

Download files

Publisher's version
Using multimedia technology to enhance self-advocacy of people with intellectual disabilities (2023).pdf
License: CC BY 4.0
File access level: Anyone

  • 139
    total views
  • 101
    total downloads
  • 6
    views this month
  • 4
    downloads this month

Export as

Related outputs

“I Forgot My Numbers and the Machine Swallowed It Up”: Adults With Learning Disabilities Share Their Perspectives on the Shift to a Cashless Society
Watts, P., Hoskin, J., Upadhyay, R., Tapley, E. and Kwiatkowska, G. 2024. “I Forgot My Numbers and the Machine Swallowed It Up”: Adults With Learning Disabilities Share Their Perspectives on the Shift to a Cashless Society. British Journal of Learning Disabilities. p. In Press. https://doi.org/10.1111/bld.12621
Living Well as You Age
Allen, K., Kwiatkowska, G., Choksi, A., Kaur, B., Weinberg, R., Dillon, K. and Aboubakari, R. 2024. Living Well as You Age. University of Greenwich.
Exploring trainee nursing associates’ experiences of home placements in primary care and social care
Leah, V., Watts, P. and Caffrey, A. 2023. Exploring trainee nursing associates’ experiences of home placements in primary care and social care. Nursing Management. In Press. https://doi.org/10.7748/nm.2023.e2098
Student nurses' experiences of discrimination and racism on work placements: What can higher education institutions do?
Caffrey, A., Botticello, J., Quarshie, P. E., Ali, L., Watts, P., Cathala, X. and Ferrante, J. 2023. Student nurses' experiences of discrimination and racism on work placements: What can higher education institutions do? Nurse Education Today. 131 (Art. 105980). https://doi.org/10.1016/j.nedt.2023.105980
Let’s just do it: Accessibility and inclusion, why does it matter? Involving people with learning disabilities in research
Choksi, A., Kaur, B., Weinberg, R., Dhillon, S., Kerai, K. and Kwiatkowska, G. 2023. Let’s just do it: Accessibility and inclusion, why does it matter? Involving people with learning disabilities in research. in: Tilly, L and Walmsley, J. (ed.) Rights in Practice for People with a Learning Disability: Stories of Citizenship Palgrave Macmillan.
In response to ‘Use of technology by older adults with an intellectual disability in Ireland to support health, well-being and social inclusion during the COVID-19 pandemic’, by Darren McCausland, Mary McCarron and Philip McCallion
Kwiatkowska, G., Dhillon, S. K. and Kerai, K. 2023. In response to ‘Use of technology by older adults with an intellectual disability in Ireland to support health, well-being and social inclusion during the COVID-19 pandemic’, by Darren McCausland, Mary McCarron and Philip McCallion. British Journal of Learning Disabilities. 51 (2), pp. 191-194. https://doi.org/10.1111/bld.12529
Digital Financial Inclusion in a Cashless Society
Kwiatkowska, G., Choksi, A., Kaur, B., Weinberg, R., Dhillon, S. and Kerai, K. 2023. Digital Financial Inclusion in a Cashless Society. RIX Centre, University of East London RIX Centre, University of East London.
Depression Earlier on in Life Predicts Frailty at 50 Years: Evidence from the 1958 British Birth Cohort Study
Watts, P., Menon, M. and Netuveli, G. 2023. Depression Earlier on in Life Predicts Frailty at 50 Years: Evidence from the 1958 British Birth Cohort Study. Journal of Clinical Medicine. 12 (17), p. 5568. https://doi.org/10.3390/jcm12175568
Labour force transitions and changes in quality of life at age 50 to 55 years: evidence from a birth cohort study
Watts, P., Bartley, M., Blane, D. and Netuveli, G. 2023. Labour force transitions and changes in quality of life at age 50 to 55 years: evidence from a birth cohort study. Ageing and Society. In Press. https://doi.org/10.1017/S0144686X2300048X
Preparing social work students for practice by involving young people with profound and multiple learning disabilities in teaching and learning
Kwiatkowska, G. and Stowell, K. 2022. Preparing social work students for practice by involving young people with profound and multiple learning disabilities in teaching and learning. Research in Teacher Education. 12 (1), pp. 35-40. https://doi.org/10.15123/uel.8xvyz
Research in Teacher Education: Volume 12, No. 1, May 2022
Czerniawski, G., Byrne, F., Doyle, M., Trimmer-Platman, T., Beigi, R., Humphreys, H., Kwiatkowska, G., Mcwhinney-Tripp, J., Boyd, P., Thomas, M. and Stowell, K. 2022. Research in Teacher Education: Volume 12, No. 1, May 2022. The School of Education and Communities, University of East London. https://doi.org/10.15123/uel.8xvy9
Digital Lifeline Fund Report: Easy Read
Mackey, J., Howe, L., Appleby, M., Stone, E., Kwiatkowska, G., Choksi, A. and RIX Social Researchers, University of East London 2022. Digital Lifeline Fund Report: Easy Read. Good Things Foundation.
Digital Lifeline: Infographic
Mackey, J., Howe, L., Appleby, M., Stone, E., Kwiatkowska, G., Choksi, A. and RIX Social Researchers, University of East London 2022. Digital Lifeline: Infographic. Good Things Foundation.
Digital Lifeline: A Qualitative Evaluation
Mackey, J., Howe, L., Appleby, M., Stone, E., Kwiatkowska, G., Choksi, A. and RIX Social Researchers, University of East London 2022. Digital Lifeline: A Qualitative Evaluation. Good Things Foundation.
Digital Lifeline Fund: Evaluation Summary
Mackey, J., Howe, L., Appleby, M., Stone, E., Kwiatkowska, G., Choksi, A. and RIX Social Researchers, University of East London 2022. Digital Lifeline Fund: Evaluation Summary. Good Things Foundation.
Costs of healthy living for older adults: the need for dynamic measures of health-related poverty to support evidence-informed policy-making and real-time decision-making
Watts, P. and Netuveli, G. 2022. Costs of healthy living for older adults: the need for dynamic measures of health-related poverty to support evidence-informed policy-making and real-time decision-making. Public Health. 212, pp. 1-3. https://doi.org/10.1016/j.puhe.2022.08.001
Racial and Ethnic Differences in Falls Among Older Adults: a Systematic Review and Meta-analysis
Wehner-Hewson, N., Watts, P., Buscombe, R., Bourne, N. and Hewson, D. 2022. Racial and Ethnic Differences in Falls Among Older Adults: a Systematic Review and Meta-analysis. Journal of Racial and Ethnic Health Disparities. 9, p. 2427–2440. https://doi.org/10.1007/s40615-021-01179-1
Addressing the Safety and Criminal Exploitation of Vulnerable Young People: Before, During and After COVID-19 and Lockdown
Ravenscroft, A., Salisbury, C., Voela, A. and Watts, P. 2021. Addressing the Safety and Criminal Exploitation of Vulnerable Young People: Before, During and After COVID-19 and Lockdown. in: Ellis, D. and Voela, A. (ed.) After Lockdown, Opening Up: Psychosocial Transformation in the Wake of COVID-19 Palgrave Macmillan. pp. 151-171
Exploring the physical activity of Iranian migrant women in the United Kingdom: a qualitative study
Soltani, N., Botticello, J. and Watts, P. 2021. Exploring the physical activity of Iranian migrant women in the United Kingdom: a qualitative study. International Journal of Qualitative Studies on Health and Well-being. 16 (Art. 1963111). https://doi.org/10.1080/17482631.2021.1963111
The public and the relational: the collaborative practices of the Inclusive Archive of Learning Disability History
Graham, H., Green, V., Headon, K., Ingham, N., Ledger, S., Minnion, A., Richards, R. and Tilley, L. 2020. The public and the relational: the collaborative practices of the Inclusive Archive of Learning Disability History. in: Popple, S., Prescott, A. and Mutibwa, D. (ed.) Communities, Archives and New Collaborative Practices Policy Press. pp. 219–234
The RIX Multi Me Toolkit: Rix Research & Media Feasibility Report
Minnion, A., Kwiatkowska, G., Watts, P., Finch, J. and Wilkie, C. 2020. The RIX Multi Me Toolkit: Rix Research & Media Feasibility Report. RIX Research & Media, University of East London.
purpleSTARS: Inclusive Curation and Production Creates Inclusive Museums
Allen, K and Minnion, A. 2020. purpleSTARS: Inclusive Curation and Production Creates Inclusive Museums. in: Ziebarth, B., Majewski, J., Marquis, R. L. and Proctor, N. (ed.) Inclusive Digital Interactives: Best Practices and Research Smithsonian Institution. pp. 115-138
An evaluation of an adaptive learning system based on multimodal affect recognition for learners with intellectual disabilities
Standen, P. J., Brown, D. J., Taheri, M., Galvez Trigo, M. J., Boulton, H., Burton, A., Hallewell, M. J., Lathe, J. G., Shopland, N., Blanco Gonzalez, M. A., Kwiatkowska, G., Milli, E., Cobello, S., Mazzucato, A., Traversi, M. and Hortal, E. 2020. An evaluation of an adaptive learning system based on multimodal affect recognition for learners with intellectual disabilities. British Journal of Educational Technology. 51 (5), pp. 1748-1765. https://doi.org/10.1111/bjet.13010
Choice of device to view video lectures: an analysis of two independent cohorts of first-year university students
Namuddu, J. and Watts, P. 2020. Choice of device to view video lectures: an analysis of two independent cohorts of first-year university students. Research in Learning Technology. 28 (Art. 2324). https://doi.org/10.25304/rlt.v28.2324
Pro-environmental behaviours and attitudes are associated with health, wellbeing and life satisfaction in multiple occupancy households in the UK Household Longitudinal Study
Netuveli, G. and Watts, P. 2020. Pro-environmental behaviours and attitudes are associated with health, wellbeing and life satisfaction in multiple occupancy households in the UK Household Longitudinal Study. Population and Environment. 41, p. 347–371. https://doi.org/10.1007/s11111-020-00337-7
The long-term health and wellbeing impacts of Healthy New Towns (HNTs): protocol for a baseline and feasibility study of HNT demonstrator sites in England
Watts, P., Rance, S., McGowan, V., Brown, H., Bambra, C., Findlay, G. and Harden, A. 2020. The long-term health and wellbeing impacts of Healthy New Towns (HNTs): protocol for a baseline and feasibility study of HNT demonstrator sites in England. Pilot and Feasibility Studies. 6 (Art. 4). https://doi.org/10.1186/s40814-020-0550-2
The long-term health and wellbeing impacts of Healthy New Towns: a six-month feasibility study of Healthy New Town demonstrator sites in England
Harden, A., Rance, S., Watts, P., McGowan, V., Findlay, G., Bambra, C. and Brown, H. 2019. The long-term health and wellbeing impacts of Healthy New Towns: a six-month feasibility study of Healthy New Town demonstrator sites in England. National Institute for Health Research.
Minimum income for healthy living and frailty in adults over 65 years old in the English Longitudinal Study of Ageing: a population-based cohort study
Watts, P., Blane, David and Netuveli, Gopalakrishnan 2019. Minimum income for healthy living and frailty in adults over 65 years old in the English Longitudinal Study of Ageing: a population-based cohort study. BMJ Open. 9 (2), p. e025334. https://doi.org/10.1136/bmjopen-2018-025334
The role of sports clubs in helping older people to stay active and prevent frailty: a longitudinal mediation analysis
Watts, P., Webb, Elizabeth and Netuveli, G. 2017. The role of sports clubs in helping older people to stay active and prevent frailty: a longitudinal mediation analysis. International Journal of Behavioral Nutrition and Physical Activity. 14, p. Art. 95. https://doi.org/10.1186/s12966-017-0552-5
Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history
Brownlee-Chapman, C., Chapman, R., Eardley, C., Forster, S., Green, V., Graham, H., Harkness, E., Headon, K., Humphreys, P., Ingham, N., Ledger, S., May, V., Minnion, A., Richards, R., Tilley, L. and Townson, L. 2017. Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history. International Journal of Heritage Studies. 24 (8), pp. 889-903. https://doi.org/10.1080/13527258.2017.1378901
RIX Wiki Evaluation Toolkit
Minnion, A., Kwiatkowska, G. and Sharpe, D. 2017. RIX Wiki Evaluation Toolkit. Institute for Health and Human Development, University of East London.
Social, cognitive, behavioural and neighbourhood characteristics associated with sedentary time in men and women living in deprived neighbourhoods
Watts, P., Hayee Shahid, Mahwish, Bertotti, Marcello and Tobi, P. 2017. Social, cognitive, behavioural and neighbourhood characteristics associated with sedentary time in men and women living in deprived neighbourhoods. European Journal Of Sport Science. 17 (7), pp. 904-912. https://doi.org/10.1080/17461391.2017.1323951
Well London: Results of a community engagement approach to improving health among adolescents from areas of deprivation in London
Frostick, C., Watts, P., Netuveli, G., Renton, A. and Moore, D. 2017. Well London: Results of a community engagement approach to improving health among adolescents from areas of deprivation in London. Journal of Community Practice. 25 (2), pp. 235-252. https://doi.org/10.1080/10705422.2017.1309611
Clustering of lifestyle risk behaviours among residents of forty deprived neighbourhoods in London: lessons for targeting public health interventions
Watts, P., Buck, David, Netuveli, G. and Renton, A. 2015. Clustering of lifestyle risk behaviours among residents of forty deprived neighbourhoods in London: lessons for targeting public health interventions. Journal of Public Health. 38 (2), pp. 308-315. https://doi.org/10.1093/pubmed/fdv028
Interactive Sensory Objects for and by People with Learning Disabilities
Hollinworth, N., Allen, K., Hwang, F., Minnion, A. and Kwiatkowska, G. 2016. Interactive Sensory Objects for and by People with Learning Disabilities. The International Journal of the Inclusive Museum. 9 (1), pp. 21-38. https://doi.org/10.18848/1835-2014/CGP/v09i01/21-38
One Page Profiles and EHC plans the Wiki way: Using RIX Wikis to implement EHC plans
Kwiatkowska, G. 2016. One Page Profiles and EHC plans the Wiki way: Using RIX Wikis to implement EHC plans. Special Needs Jungle.
Changes in health outcomes in diabetic and pre-diabetic patients in the Newham Community Prescribing pilot project: analysis of pre and post data
Bertotti, M., Watts, P., Akhter, I. and Eselebor, D. 2014. Changes in health outcomes in diabetic and pre-diabetic patients in the Newham Community Prescribing pilot project: analysis of pre and post data. Institute for Health and Human Development, University of East London.
The RIX Wiki Software
Minnion, A. and Kwiatkowska, G. 2014. The RIX Wiki Software. UK and EU RIX Research & Media.
Volunteering and learning in HE: exploring and acknowledging student experience
Weston, C., Guardini, Elena, Minnion, A. and Kwiatkowska, G. 2013. Volunteering and learning in HE: exploring and acknowledging student experience. Research in Teacher Education. 3 (2), pp. 7-14. https://doi.org/10.15123/uel.85w25
Research in Teacher Education: Volume 3, No.2, October 2013
Czerniawski, G., Weston, C., Kidd, W., Atwal, Kulvarn, Bonilla Medina, S X, Etherington, Margaret, Weller, Alan, Fielding, Michael, Paffard, F., Wells, D., Guardini, Elena, Minnion, A., Kwiatkowska, G., Cruz Arcila, Ferney, Gariazzo, Julia and Viswarajan, S. 2013. Research in Teacher Education: Volume 3, No.2, October 2013. The School of Education and Communities, University of East London. https://doi.org/10.15123/uel.89178
W2ID – Web 2.0 for People with Intellectual Disabilities
Saward, C., Minnion, A. and Kwiatkowska, G. 2013. W2ID – Web 2.0 for People with Intellectual Disabilities. Education, Audiovisual & Culture Executive Agency.
Multimedia Advocacy for Person Centred Planning: Small Research Pilot Report
Kwiatkowska, G. and Minnion, A. 2013. Multimedia Advocacy for Person Centred Planning: Small Research Pilot Report. RIX Research & Media, University of East London.
A multilevel analysis of the association between social networks and support on leisure time physical activity: evidence from 40 disadvantaged areas in London
Yu, Ge, Renton, A., Schmidt, Elena, Tobi, Patrick, Bertotti, M., Watts, P. and Lais, Shahana 2011. A multilevel analysis of the association between social networks and support on leisure time physical activity: evidence from 40 disadvantaged areas in London. Health & Place. 17 (5), pp. 1023-1029.
The influence of environmental factors on the generalisability of public health research evidence: physical activity as a worked example
Watts, P., Phillips, Gemma, Harden, A. and Renton, A. 2011. The influence of environmental factors on the generalisability of public health research evidence: physical activity as a worked example. International Journal of Behavioural Nutrition and Physical Activity. 8 (1), pp. 1479-5868.
Interactive Sensory Objects Developed for and by People with Learning Disabilities
Hollingworth, N., Hwang, F., Minnion, A., Kwiatkowska, G., Lowe, T., Allan, K. and Weldin, N. 2012. Interactive Sensory Objects Developed for and by People with Learning Disabilities. HCI2012 - People & Computers The 26th BCS Conference on Human Computer Interaction. Birmingham, UK 12 - 14 Sep 2012 BCS Learning and Development. https://doi.org/10.14236/ewic/HCI2012.91
Communication and Empowerment: A Place for Rich and Multiple Media?
Bunning, Karen, Heath, Becky and Minnion, A. Communication and Empowerment: A Place for Rich and Multiple Media? Journal of Applied Research in Intellectual Disabilities. 22 (4), pp. 370-379. https://doi.org/10.1111/j.1468-3148.2008.00472.x
Beyond the Road Ahead - Project Report
Minnion, A. 2008. Beyond the Road Ahead - Project Report. The RIX Centre with Social Care Institute for Excellence RIX Centre, University of East London.